My name is Irene Tuffrey.I am a breast cancer patient. I was diagnosed in April 2014, aged 50, following investigations for a breast lump. The cancer is still in the early stages, I was told. The outlook is very good, I was told. I believe that it is.
I live in London with my husband and three children. At the time of diagnosis, my son was 16 and my daughters were 14 and 10. I come from the Netherlands but have lived and worked in England for 30 years.
I started this blog because it is an easy way to keep family and friends up to date. I have been overwhelmed by the love, concern and interest they have shown.
And I started this blog because I found myself brimming with words, stories and reflections. I have always made sense of challenging stretches on life's journey through writing.
Writing about cancer, death and dying is also my job. I am a nurse by training. I have worked in palliative care, and I have worked with people who have intellectual disabilities. For over a decade, I have done research on the cancer and end-of-life care needs of people with intellectual disabilities. I have even written books about their experiences, focusing on these questions: What is it like to have cancer? and How can we help people to understand and process bad news? If you are interested in my work, you can find out more on my "breaking bad news" website or university profile.
(Professionally, and in all my publications, I use my full name: Irene Tuffrey-Wijne)
Now that cancer has entered my own personal life, it seems only natural to turn the spotlight on my own experiences. The research method I love best is ethnography. Like an anthropologist, I have been trying to understand cancer experiences from the inside, trying to become one with the natives.
Now, I have truly become a native in cancer-land. I cannot help myself being an observer, but now I am also the observed.
This blog is the most personal writing I have ever done, and the first publication that has not been scrutinised by editors or peer-reviewers.
There will be stories about the cancer journey itself, with all its highs and lows; about a healthcare professional who has suddenly become a patient; about how a stuffed owl has helped not only my children but also myself to make sense of it all; about love, friendship, loss and life.
This blog journey starts at the death of my mother, four days after my mastectomy. Somehow, these two major life events have become inextricably connected.
You are welcome to comment or share these stories. I am writing mostly for myself, but if it helps you too, I am glad.